Welcome to the Pelvic Pain Support Network

NEW: Please sign our 2 e-petitions.

petition 1) 18 week nhs wait MUST mean 18 weeks (click here)

petition 2) stop employers from disciplining and dismissing employees for sickness absence whilst they are waiting for treatment on the nhs (click here)

Please also send copies of these petitions and the link to your facebook and email contacts asking them to sign if they agree. We need as many signatures as possible if we are going to try and influence government.

About the Pelvic Pain Support Network

The Pelvic Pain Support Network is a patient led organisation with a board of trustees who are all patients or carers. As a registered charity, we are run entirely by volunteers.

Our advisory panel comprises experts from across the world, including Australia, the US and France who are clinicians, researchers and health professionals with an interest in pelvic pain.

What we do:
• Provide support, information and advocacy for those with pelvic pain, their families and carers.

• Promote and deliver education sessions about pelvic pain in the curriculum of health professionals and amongst the public.

• Encourage and support of research to increase knowledge and understanding of the impact of pelvic pain"

For more information see here

 

The Pelvic Pain Support Network is a registered charity. We support patients with pelvic pain whether they have a diagnosed condition or not. We attend and represent those with pelvic pain at many local, national and international meetings, seminars and conferences.

This website provides:

  • Support and information about diagnosis and treatment for those with pelvic pain, their families and carers

  • Patients' experience, managing and communicating about long term pelvic pain - message board

Some of the conditions covered are: Adenomyosis, Adhesions, Cancer (Bowel and Ovarian), Crohn's Disease, Cysts, Diverticulitis, Endometriosis, Deep Endometriosis, Interstitial Cystitis, Irritable Bowel Syndrome, Painful Periods (Dysmenorrhoea), Pelvic Inflammatory Disease, Pudendal Neuralgia, Ulcerative Colitis and Vulval pain.


Join our new support community at pelvicpain.healthunlocked.com/join

Sep 28, 2011

Connect with other people affected by long-term pelvic pain and make your experience count! You can help each other by sharing information and experiences on how to manage your pelvic pain condition.

Click here for further information

Sep 28, 2011

29-30 September 2011, Kaunas, Lithunia

see website for further information

Jun 18, 2011

Take part in this years Adidas Women's Challenge 5km fun event in Hyde Park and raise funds for PPSN

Click here for further info

Jan 15, 2011

Researchers have identified two genetic variants that increase the risk of women developing endometriosis.

See news reports here and here 


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